I had no idea that this was something that was bothering her until I was sifting through my own FaceBook feed and came across her posted question.
The gist of it was that she wanted to know how to keep her sites on while she is swimming. She wrote that she had to put a new site on virtually everyday as the site adhesive was basically dissolving in the water.
Wow.
I knew she had one or maybe two sites pop out, but I didn't realize that all of her sites were doing that. She is older now and able to do site changes without me. As I read her question, I realized that she was handling more than I even realized.
Whew.
It took me a moment to catch my breath. Just a year ago, I was still the 'in-charge of type 1 diabetes' person and let me tell you, NOTHING escaped my notice.
But now, well, now she was very much edging out my control (in a good way) and things were not nearly as cut and dry as they once were. No pun intended.
On a side note, I swear the change in her skin can only be attributed to the dreaded puberty. It most likely is changing, causing different balances in oils and the new skin easily detaches from her IV Prep infused, Tegaderm covered Inset 30 infusion set.
Oh the joys of growing up!
So all of this led to my oldest daughter reaching out and asking about new ways of handling things. That's pretty darn incredible. For everyone reading this at home with young babies, toddler and kids living with type 1 diabetes, this day really does come.... the day of independence. And to me, well, it is a little awesome and a whole lot of amazing.
Of course, being the elder 'in-charge of type 1 diabetes' person, I am going to try to help her out.
What do you use to keep infusion sites on while swimming?
Opsite Flexifix. It's the best. Works for my ds when swimming! I'd be happy to send you some to try before you buy for a couple of test swimming days!
ReplyDeleteWow, I couldn't imagine going through what shes going through. I don't know much about this but I found a tegaderm site that might be helpful. Thanks so much for sharing!
ReplyDeleteSo I don't have any swimming tips - I don't spend much time in the pool...
ReplyDeleteBut I think it is super cool that she is reaching out for input all on her own. You've empowered her! :-)
Hello - we use the Nexcare waterproof bandaids to cover his site (knee/elbow size) and it works!! We have been using this for over a year now - here is the link:but you can find it anywhere, we usually buy it in Target. http://www.amazon.com/gp/product/B001CBDM1K/ref=pd_lpo_k2_dp_sr_3?pf_rd_p=1535523722&pf_rd_s=lpo-top-stripe-1&pf_rd_t=201&pf_rd_i=B001GR52UE&pf_rd_m=ATVPDKIKX0DER&pf_rd_r=0P56V0FDW1C0C5HA8PR4
ReplyDeleteI forgot to mention, my son swims almost everyday, and it has really helped also helps keep the sand out when we are at the beach.
ReplyDeleteSkin tac/mastisol under the site. Then cover with opsite flexifix. Use unisolve to remove.
ReplyDelete