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My 6 year old daughter was diagnosed with type 1 diabetes on Monday, 4 days ago. I am over whelmed and hopeful. We came home from the hospital yesterday. I know this is something that is manageable, and I know she will lead a long life. But at this moment I just want to cry for baby. But I have done that and now I have to be her advocate. We were at one of the best hospitals in the area. But I don't feel like they gave me any personal guidance, just medical. Should I go back to work. When can I go back to work? The nurse at the school is wonderful. But with such a recent onset will she be able to understand her lows, I don't even yet. Do I need to get her a 504/aid in the class room. School starts in 3 week, Wed after Labor day. My head is spinning and I landed on this site.. any help you can give would be great.
ReplyDeleteHello! Sending you huge hugs for all that you have been through. I am so sorry to hear of your little girl's diagnosis. It is never, ever easy to deal with a major life change but I want you to know that you are NOT alone. The entire reason that I put this site together was having felt that way (could have written your post myself) back in 2006. While it may not seem possible at this point, you will get to a new normal and find that much of life as you knew it will go back to being happy, healthy and 'normal'. I like to say 'kids first, diabetes second'. So whatever you did before type 1 diabetes came in the picture, you can make happen with type 1 diabetes. It just takes a little extra planning. School will be a great diversion for you both. Take this time to set up a care plan and meet with the school to begin your 504 plan. Decide how often she will tested and make a comfortable plan for where snacks will be kept in the classroom. I like the two-hour rule in the beginning. Have your plan include checks every two hours until you feel like you have a good balance. Buy lots of yummy snacks like chocolate milk, peanut butter treats, cheese, crackers and cereals to help keep low blood sugars from happening. Request that she not be placed in a peanut free room if at all possible. That way you will be able to have more options. Hugs, hugs, hugs, keep asking questions and feel free to head over to our facebook page where other moms can also offer support and advice:)
ReplyDeleteThank you so much for replying to my message. We were so lucky that we caught it "early" she was not in the ICU. She bounced back in no time. Her sugar has gone from 83 - 472 in just 24 hours.. The hospital said just right down the numbers, we will talk about adjustments soon. We are in daily contact with the nurses. But those numbers are all over the place. I know we will find out norm, and my husband keeps reminding me today is day one at home. But I know I need to get organized, I need to be her advocate and I can't skip a beat. I am sure this time next week I will have my bearing straight
ReplyDeleteThank you so much for replying to my message. We were so lucky that we caught it "early" she was not in the ICU. She bounced back in no time. Her sugar has gone from 83 - 472 in just 24 hours.. The hospital said just right down the numbers, we will talk about adjustments soon. We are in daily contact with the nurses. But those numbers are all over the place. I know we will find out norm, and my husband keeps reminding me today is day one at home. But I know I need to get organized, I need to be her advocate and I can't skip a beat. I am sure this time next week I will have my bearing straight
ReplyDeleteThank you for responding.. I am just trying to gather as much information as possible. My goal is to get organized and get educated. And get a 504. I think my 6 year old will need an aid, the things they don't mention in the hospital.
ReplyDeleteAwesome blog posted.... Thank you for sharing it......
ReplyDeleteBlood Sugar Monitor
Wonderful blog you have set up! I was diagnosed at age 12 in 1969! It was such a lonely experience back then. It warms my heart to know that your girls, as well as all others, won't have to travel this journey alone. I'm happy to report that I'm still healthy in my 47 years with Type I, and haven't let it hold me back. Love to you all!!
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